Friday, November 2, 2007

Hard

Forgive me for going out of order for a minute. Especially when I left you hanging for so long after that last post. Autism has been on TV and in the news a lot in the last month. I have been watching and it brings a lot back. Autism is everyday for us. Some days it is louder and more consuming that others.

It was hard hearing my son had a developmental delay. It was hard hearing he had an autism spectrum disorder. It was even harder to read, and I read it first on the internet, that a cause was suspected BEFORE my son was even born. The "one size fits all" approach had already been called to question. That was hard to read. VERY HARD. This did not have to happen to my son. It is hard, heart breaking really, to know that it is still happening. Mothers are still going in for well child visit and being mis-informed about the vaccines that their child is receiving. More children will be diagnosed with autism. It is hard to go on the message boards and see posts that say "newly diagnosed", "New here, need help". That is hard. More children. More families. More lives being turned upside down by autism. Yes, it is still upsetting. Yes, I am still angry. Yes, I am still continuing to heal my son.

4 comments:

Unknown said...

Gina & Matt,

Karen and I just read your Xmas card and could not believe what your family is going through.

Karen tried to call, but your number is unlisted. She would love to talk to you.

We have moved, we are now in Clifton Park, NY, near my family.
Our phone is 518-406-5264.

We hope your family the best.

Paul, Karen, Matt & Becca

jendajen said...

Hi, I followed a link about your book from from Facebook. I read all of your posts...

It's like you're describing my son in this blog. We have struggled to get a dx as well. Because our son is so high functioning and happy, we've been brushed off over and over.

We were told it's just a speech delay, you can't diagnose autism in preschoolers, it's ADHD, maybe we're just not working hard enough with him.

Recently he was diagnosed with Asperger's syndrome.

Interestingly, he had those same issues at the same ages you describe with your son, screaming in the middle of the night, couldn't cope without having a bottle on hand, screaming out of nowhere in the middle of the day, etc.

frangi said...

thanks for sharing your story. We have an autistic grandson who is just 5. His story has many similarities with M. The thing is to know one child with autism is to know one child. They are all different, all incredibly special.

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